Surviving the Unseen: My Battle with Deep Vein Thrombosis and Pulmonary Embolism

A personal story of surviving deep vein thrombosis (DVT) and pulmonary embolism (PE), with clear explanations of what they are, symptoms to watch for, and when to seek urgent medical care.

MY STORY AND JOURNEYHEALTH & WELLNESS

Christopher J

10/10/20252 min read

My Story: When Pain Became a Warning

I was admitted to the hospital in excruciating pain—9 out of 10 on the scale. What I thought might be another flare-up turned out to be something far more dangerous: a pulmonary embolism (PE) caused by a blood clot behind my knee.

Doctors discovered not just one clot, but several—two lodged in my already fragile lungs (damaged from a collapse during COVID-19 in 2021) and another dangerously close to my heart. It was a life-altering moment.

I was stabilized with IV fluids, strong pain control, and immediately started on blood thinners. Now, I face a six-month course of treatment, followed by another six months of maintenance. It’s a long road, but I survived. And survival means sharing this story so others know the signs before it’s too late.

What is Deep Vein Thrombosis (DVT)?

  • Definition: A blood clot that forms in a deep vein, usually in the legs.

  • Why it matters: If part of the clot breaks off, it can travel through the bloodstream and lodge in the lungs, causing a pulmonary embolism.

Common Symptoms of DVT

  • Swelling in one leg (rarely both)

  • Pain or tenderness, often starting in the calf

  • Warmth or redness over the affected area

  • Cramping that doesn’t go away

What is a Pulmonary Embolism (PE)?

  • Definition: A blockage in one of the pulmonary arteries in the lungs, usually caused by a clot that traveled from the legs.

  • Why it’s dangerous: It can cut off blood flow, damage lung tissue, strain the heart, and be fatal if untreated.

Common Symptoms of PE

  • Sudden shortness of breath, even at rest

  • Sharp chest pain that worsens with deep breaths or coughing

  • Rapid heartbeat or palpitations

  • Coughing up blood

  • Lightheadedness, fainting, or sudden collapse

When to See a Doctor vs. When to Go to the ER

  • Call your doctor promptly if you notice leg swelling, redness, or persistent calf pain.

  • Go to the ER immediately if you experience:

    • Sudden shortness of breath

    • Chest pain or pressure

    • Coughing up blood

    • Fainting or feeling like you might pass out

The Link Between Long COVID and Clotting

Emerging research suggests that people with long COVID may have a higher risk of abnormal blood clotting. The immune system’s ongoing inflammatory response can make the blood more prone to coagulation. While not everyone with long COVID will develop clots, it’s a risk worth monitoring closely.

Moving Forward

This diagnosis is another obstacle in my path, but not one I can’t overcome. Blood thinners, regular follow-ups with a hematologist, and lifestyle adjustments are now part of my blueprint.

If you take anything from my story, let it be this: listen to your body, don’t ignore severe pain or sudden changes, and never hesitate to seek emergency care. Acting quickly can save your life.